Archive for the ‘Advocacy’ Category

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Join us for a Thunderclap for World Preeclampsia Day on May 22, 2017!

May 10, 2017

Thunderclap

May is National Preeclampsia Awareness Month here in the United States, but this year, the Preeclampsia Foundation is pleased to cosponsor the first-ever World Preeclampsia Day with @BabyCenter, Ending Eclampsia/USAID, ISSHP & PRE-EMPT.   Let’s make our message heard worldwide by joining our Thunderclap on May 22 at 8am Eastern Standard Time!

What’s a Thunderclap you ask???   Social media is an easy way to say something, but it’s a difficult way to be heard. A Thunderclap is the first-ever crowdspeaking platform that helps people be heard by saying something together.  When the “thunder” strikes, a single message is mass-shared by everyone who joined, flash mob-style, so it rises above the noise of your social networks and spreads awareness quickly.

JOIN IN AND SHARE: http://thndr.me/NvxqmB #worldpreeclampsiaday

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Striding Forward on the 2017 Promise Walk Season!

January 5, 2017

13227355_1798158870413062_3213535811455717238_oIt’s that time of year again — when we lace up our tennis shoes and get ready to hit our local parks in May and June to “Make Strides and Deliver Hope” for families affected by preeclampsia!

Registration is now open for locations all across the U.S. at www.promisewalk.org.

The Promise Walk holds incredible importance to the Preeclampsia Foundation’s ability to fulfill our mission of providing compassionate support and raising awareness in our local communities. But you don’t have to take our word for it! We walk for families like this:

“When my grandson was stillborn we saw the walk on Facebook and decided to do it in his memory. It has become our family’s most precious way to share his memory.”

We’re still looking for some volunteers to help us continue building our walks’ legacies in the following great communities:
  • Lake Charles, LA
  • Oklahoma City, OK
  • Nashville, TN
  • San Diego, CA
  • Syracuse, NY
If you live in one of these areas, or just want to support the events happening in your own area, please contact Laney Poye at laney.poye@preeclampsia.org for more information on becoming a volunteer.
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Do you want to be a preeclampsia patient advocate?

March 4, 2016

Have you wanted to become a voice for preeclampsia awareness, but not been sure how to get started?

Participating in the Promise Walk for Preeclampsia is a great first step and inspires the community around you. But you might ask, what more can I do besides walk and fundraise?

If that question keeps you up at night, you might be interested in participating in a new in-person training and networking opportunity hosted this fall by the Preeclampsia Foundation.

Read the rest of this entry ?

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A Tribute to Our Volunteers

April 24, 2013

volunteersNever doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it’s the only thing that ever has. ~Margaret Mead

Many words come to mind when describing a volunteer: devoted, inspiring, passionate. But those words feel pale & generic when faced with the deep motivation and strength that makes up the members of the Preeclampsia Foundation’s volunteer core.

Volunteers come to our Foundation for many different reasons: mourning the loss of a loved one. Mourning the loss of that “perfect” pregnancy experience. Celebrating their gratitude in having a new life. Honoring a loved one’s experience which they can only hope to never personally understand.

But they stay for one overwhelming reason. It is their desire that no woman & no family, should feel as alone, insecure and frightened as one does when faced with an overwhelming health crisis like preeclampsia, HELLP syndrome or eclampsia. From improving prenatal education to engaging with health care providers to supporting families after their preeclampsia experience, our volunteers are a family who support impacted families through every step of the journey!

This week many organizations are celebrating National Volunteer Appreciation Week, but words are simply not sufficient to describe why we love our volunteers, because without them, this Foundation would be nothing. We were started by “thoughtful, committed citizens,” and we continue to push our mission forward through an ever-increasing number of those citizens.

So to all of you out there supporting this cause and this Foundation’s mission of hope, we love you and your beautiful vision for what this world will look like without hypertensive disorders of pregnancy. THANK YOU!

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Looking to HELLP Others in Richland Center

April 10, 2013

Richland CoordinatorFirst time walk coordinator Kally Clary looks forward to a beautiful spring day when Richland Center, WI welcomes their first Promise Walk for Preeclampsia on May 11th.

Kally has learned a great deal about preeclampsia and HELLP syndrome since her own diagnosis in January 2012.  She was 38 weeks pregnant and was being induced for persistent labor pains.  When her physician pulled blood work they found she had HELLP syndrome and she was immediately sent to a larger hospital where they performed an emergency c-section.

Kally’s son, Carson, is a healthy, happy baby boy, but due to her condition, she was under anesthesia for the birth and missed hearing his first cries and her husband missed cutting the cord.  She came home from the hospital and scoured the blogs and websites.  She found so many similar voices echoing her own frustration at the lack of answers about why she had been so sick and the inability to determine what would happen in any future pregnancies.

It’s that dissatisfaction with current information that led her to commit to coordinating this year’s Promise Walk in Richland Center.  She hopes to raise awareness within her community and meet their fundraising goal of $5300.  She also hopes that this will assist the Preeclampsia Foundation with their mission to work toward finding a cause and a cure for preeclampsia.

The Richland Center walk will include speakers, food, children’s activities, and of course, the walk.  Participants may enter the stroller decorating contest and you might even be lucky enough to score sippy cup or bottle from local sponsor, Nuk.

To register for the walk on May 11th at Krouskop Park, go to www.promisewalk.org/richlandcenter.

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The Loss of One Twin and Miraculous Survival of Another

March 20, 2013

kathyaStephensonFamilyMicro-preemies.  That’s the name given babies born at the teeny, tiny size at which Albany, NY Promise Walk for Preeclampsia Coordinator A. Kathya Stephenson’s baby girls were born.  Kennedy was a mere 14 oz and Kendyll was only 1 lb, 4 oz.  When you stop to think how very small that is, how very precious these little girls were, it’s even more amazing that Kendyll survived.

Kathya experienced preeclampsia and was forced to deliver her twin daughters.  Because of her illness, the girls were not receiving the proper nutrition they needed, so they were even smaller than their gestational age.  After her experience, Kathya was moved to take action and attended the 2012 New York City Promise Walk.

“As we released a balloon when we reached the middle of the Brooklyn Bridge,  I felt like we were sending a little gift to our little sweet angel in heaven,” said Kathya. She knew that she wanted to bring that same feeling of hope and love to her area to preeclampsia survivors and their families in upstate New York.

This will be her first year coordinating and she has big hopes for the Capital City walk.  Kathya aims to help educate others in her community about the symptoms of preeclampsia.  Through the work of their walk and volunteers, they hope to have Preeclampsia Foundation brochures in as many OB offices as they can.

You can join Kathya, her family and others at the walk on May 11th at the Crossings of Colonie.  Kathya will be sharing her story and celebrating the life of Kendyll as well as remembering the brief time that Kennedy spent with them.

The Promise Walk will also include family activities, a raffle and music.

You can register now at www.promisewalk.org/albany.

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Looking for Her Own Silver Lining Playbook

February 20, 2013

 First time coordinator Sara Scheirer Collins is looking to find something positive from her own traumatic pregnancy experiences.  After developing HELLP Syndrome in her first pregnancy and severe preeclampsia in her second, Sara hopes to spread the message of awareness in Greenwood, South Carolina.

Following the belief that knowledge is power, the Greenwood Promise Walk for Preeclampsia plans to reach at least 100 community members as well as partner with local physicians.  Additionally, the Promise Walk will honor local mothers and babies who have experienced preeclampsia with a table set up displaying their photos and stories.

Looking to strike a fun, family tone as well, Sara promises a “short and sweet one mile walk,” kids’ activities and a hot dog and bake sale.  Sara believes that if she “can provide useful information and bring awareness to at least one mother and child who may face the same situation, then I will be happy with the results of this walk.”  She’ll have found her silver lining.

The Greenwood Promise Walk will be held at the Greenwood Civic Center on May 18th.  To register, go to www.promisewalk.org/greenwood.