Archive for the ‘HELLP Syndrome’ Category

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Join us for a Thunderclap for World Preeclampsia Day on May 22, 2017!

May 10, 2017

Thunderclap

May is National Preeclampsia Awareness Month here in the United States, but this year, the Preeclampsia Foundation is pleased to cosponsor the first-ever World Preeclampsia Day with @BabyCenter, Ending Eclampsia/USAID, ISSHP & PRE-EMPT.   Let’s make our message heard worldwide by joining our Thunderclap on May 22 at 8am Eastern Standard Time!

What’s a Thunderclap you ask???   Social media is an easy way to say something, but it’s a difficult way to be heard. A Thunderclap is the first-ever crowdspeaking platform that helps people be heard by saying something together.  When the “thunder” strikes, a single message is mass-shared by everyone who joined, flash mob-style, so it rises above the noise of your social networks and spreads awareness quickly.

JOIN IN AND SHARE: http://thndr.me/NvxqmB #worldpreeclampsiaday

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Team L2HK Raises Preeclampsia and HELLP Syndrome Awareness in Chicago

March 28, 2017

NikkiWoodbury Chicago

Nikki Woodbury and her team, Team L2HK, walk (and even run!) in Chicago to raise awareness for Preeclampsia and HELLP Syndrome.  Nikki and her sister-in-law, Vanessa Ronowski, are the Co-Coordinators of the Promise Walk for Preeclampsia in Chicago this year.

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Oklahoma Family Shares Story of Tragedy and Triumph

May 28, 2015

The story of Heather, Brian and Abby Hill, the 2015 Oklahoma City Promise Walk Mission Family, is filled with both tragedy and hope for others.

In 2007, Heather was pregnant with her first child, a baby girl Chloe. She began to experience severe migraines early into the pregnancy and intense swelling. Heather was having increased blood pressure at every doctor visit but still was told to go home and that everything was fine.

The Hills’ saw a specialist at 24 weeks and was informed Heather had blood clots in her placenta and they were going to have to monitor the baby closer to measure her growth as the placenta wasn’t providing her with enough nutrients. At week 26, Heather started having severe upper right abdominal pains that went around to her back and she felt the urge to urinate all the time but couldn’t go. All of these issues were told to her nurse; who said she probably was just having Braxton-Hicks. Read the rest of this entry ?

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Norris Family Raises Awareness for Kansas City, Missouri

May 20, 2015

baby_norrisOne of the most important parts of any Promise Walk event is the survivor story. Today we get to meet Lindsay and Camden Norris of Team Harrison in Kansas City (www.promisewalk.org/KansasCity) the 2015 Mission Family. Lindsay was only 30 weeks pregnant when severe preeclampsia and HELLP syndrome threatened her life and the life of her unborn son Harrison.

1. How have you and your family been involved with the Preeclampsia Foundation?
We have been involved with the Preeclampsia Foundation these last two years through participation, and this year in the role of mission family, with The Promise Walk of Kansas City. We so enjoy being a part of this amazing event to help support the Preeclampsia Foundation’s mission and to connect with other local families who have been affected by Preeclampsia and HELLP Syndrome. Through sharing our story and helping to spread awareness about these diseases- we can help save lives of other mommies and babies. Being a part of that has been the best medicine of all!
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A Tribute to Our Volunteers

April 24, 2013

volunteersNever doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it’s the only thing that ever has. ~Margaret Mead

Many words come to mind when describing a volunteer: devoted, inspiring, passionate. But those words feel pale & generic when faced with the deep motivation and strength that makes up the members of the Preeclampsia Foundation’s volunteer core.

Volunteers come to our Foundation for many different reasons: mourning the loss of a loved one. Mourning the loss of that “perfect” pregnancy experience. Celebrating their gratitude in having a new life. Honoring a loved one’s experience which they can only hope to never personally understand.

But they stay for one overwhelming reason. It is their desire that no woman & no family, should feel as alone, insecure and frightened as one does when faced with an overwhelming health crisis like preeclampsia, HELLP syndrome or eclampsia. From improving prenatal education to engaging with health care providers to supporting families after their preeclampsia experience, our volunteers are a family who support impacted families through every step of the journey!

This week many organizations are celebrating National Volunteer Appreciation Week, but words are simply not sufficient to describe why we love our volunteers, because without them, this Foundation would be nothing. We were started by “thoughtful, committed citizens,” and we continue to push our mission forward through an ever-increasing number of those citizens.

So to all of you out there supporting this cause and this Foundation’s mission of hope, we love you and your beautiful vision for what this world will look like without hypertensive disorders of pregnancy. THANK YOU!

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Looking to HELLP Others in Richland Center

April 10, 2013

Richland CoordinatorFirst time walk coordinator Kally Clary looks forward to a beautiful spring day when Richland Center, WI welcomes their first Promise Walk for Preeclampsia on May 11th.

Kally has learned a great deal about preeclampsia and HELLP syndrome since her own diagnosis in January 2012.  She was 38 weeks pregnant and was being induced for persistent labor pains.  When her physician pulled blood work they found she had HELLP syndrome and she was immediately sent to a larger hospital where they performed an emergency c-section.

Kally’s son, Carson, is a healthy, happy baby boy, but due to her condition, she was under anesthesia for the birth and missed hearing his first cries and her husband missed cutting the cord.  She came home from the hospital and scoured the blogs and websites.  She found so many similar voices echoing her own frustration at the lack of answers about why she had been so sick and the inability to determine what would happen in any future pregnancies.

It’s that dissatisfaction with current information that led her to commit to coordinating this year’s Promise Walk in Richland Center.  She hopes to raise awareness within her community and meet their fundraising goal of $5300.  She also hopes that this will assist the Preeclampsia Foundation with their mission to work toward finding a cause and a cure for preeclampsia.

The Richland Center walk will include speakers, food, children’s activities, and of course, the walk.  Participants may enter the stroller decorating contest and you might even be lucky enough to score sippy cup or bottle from local sponsor, Nuk.

To register for the walk on May 11th at Krouskop Park, go to www.promisewalk.org/richlandcenter.

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Taking the Raleigh Reins

March 27, 2013
Richie, Molly and their miracle Payton with friends at the 2011 Raleigh Promise Walk.

Richie, Molly and their miracle Payton with friends at the 2011 Raleigh Promise Walk.

For the past few years, Leanne Parke has led the charge for the Raleigh Promise Walk for Preeclampsia.  When Leanne’s family relocated to Hershey, Pennsylvania this past year, Molly Herring took over and kept the Promise Walk going.

Molly attended the last two years supporting the walk after her own struggle with preeclampsia.  At 29 weeks in her first pregnancy, she was diagnosed with severe preeclampsia and later with HELLP syndrome.  A day that began with plans to have her hair done and take her niece to the local fair turned into a frightened call to her husband telling him he needed to pack her bags and that she was being admitted to the hospital.

Doctors initially hoped to manage Molly’s preeclampsia, but once she developed HELLP, all bets were off and she was induced into labor.  Her daughter was born at 2 lbs, 12 oz and was so tiny her husband could put his wedding ring around her wrist.  Thankfully, today both Molly and her now two year old little girl have recovered and are healthy and happy.

Having enjoyed the sense of community and new friends that walks have given her in past years, Molly looks to share that with newcomers and return walkers in Raleigh.  Participants can expect to hear speakers, enjoy music and the silent auction.  Kids can jump in the bounce house or have their faces painted.

You can join the Raleigh Promise Walk by registering now at www.promisewalk.org/raleigh.  The walk takes place on Saturday, May 11th at Apex Community Park.